MND SUCKS but we are strong MND Awareness broken heart T-Shirt

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A new marathon to honour rugby league legend Rob Burrow MBE launched this year, with the MND Association named as a charity partner. Guidance on how physiotherapy can help if you have been diagnosed with MND and how to access this support. England Rugby League's Men and Women return to international action on Saturday 29 April for the first time since last year's Rugby League World Cup - a double-header with France at Warrington which is the launchpad for a game-wide fundraising effort in aid of the MND Association.

An explanation of why we ask for information and how it is used. This sheet also explains how we protect confidentiality and your rights. Disease types Information about alternative ways to communicate and how to access further support if your speech is affected by MND. Our range of award-winning guides, providing comprehensive information about MND and how to manage its impact. See Introductory information above for smaller booklets.Guidance on how ventilation can be withdrawn, if wished, and questions to raise with the professionals who support. Broadcast in 2022, the BBC documentary Rob Burrow: Living with MND took an intimate look at Rob’s life with MND more than two years on from his diagnosis. The programme follows Rob on a trip to the swimming pool with wife Lindsey, cheering on his children at school sports day and an appointment with his neurologist. This is the second time Rob has generously allowed the cameras into his home to raise awareness, after sharing the first year after being diagnosed in the documentary Rob Burrow: My Year with MND, which was released in 2020. The powerful programme was shortlisted for a National Television Award in 2021. Identifying difficult emotions that may happen for people with a diagnosis of MND and their carers. This guide includes how to seek support and the different therapies available.

I have a physical problem which affects my speech, but I can hear and understand you. Your help and patience would be appreciated. Thank you.” Former Leeds Rhinos scrum-half Rob Burrow MBE was diagnosed with motor neurone disease in December 2019, just two years after ending his playing career by captaining Leeds to a record-extending eighth Super League Grand Final. Our information sheet to help explain some of the benefits and other types of support available to families with children. Our smaller introductory resources can help if you or someone you are close to has been recently diagnosed with MND.

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Developed by SITraN – the Sheffield Institute for Translational Neuroscience and made in collaboration with people living with MND, their videos help explore decision-making about assisted ventilation and how it is used in daily life. Information on the different types of support that may be available for families affected by MND. Daily living An A5 flyer mentioning the range of information we provide for people living with and affected by MND, or Kennedy’s disease. The Rob Burrow Leeds Marathon took place on Sunday 14 May 2023 with the start and finish at the iconic Headingley Stadium, where Association Patron Rob accomplished some of his greatest sporting achievements.

Information to help if you are supporting someone with MND who may be affected by changes to thinking and behaviour. An overview of the range of care available to help you if you have MND or Kennedy's disease, from primary care through to specialist. Wouldn't it be amazing if we could sell 5,000 replica shirts - one for every person currently living with MND in the UK? I'm delighted to say that both matches will be broadcast live by Sky Sports and to see legions of England fans at the game wearing this iconic shirt would make very special television."This section of our main guide for people with MND looks at ways for the whole family and friends to communicate about the changes the disease will bring. Guidance on riluzole, which is the only drug licensed in the UK to help treat MND. Physical therapies

Guidance on how and when to apply for a Disabled Facilities Grant (DFG) and other benefits regarding housing. Developed by Sheffield Institute for Translational Neuroscience (SITraN), MyTube is a useful online resource containing short videos and information about gastrostomy to help people with MND learn more and make decisions about the intervention. It features both health professionals, and people with MND discussing their experiences.A small booklet to help those new to the caring role when someone close has been first diagnosed with MND. An audio versionof this guide is also available.